Stillbirth support resources

AIMS Journal, 2015, Vol 27 No 3

Shane Ridley highlights good support organisations and their websites

Groups supporting parents

There are many sources of support listed on the Internet and I have picked out a number which are relevant and current. I found others but chose not to add them to this list - many, for instance, I found to be not kept up-to-date. My apologies if I have missed any good ones.

UK based

The 'go to' site for up-to-date resources for parents and health workers, and listed are details of current and completed research projects and campaigns. There is a very detailed list of links and organisations on this page:

Child Bereavement UK
A charity that provides resources and support when a baby or child dies, including after miscarriage or stillbirth. Support includes a helpline, groups, information sheets and training packages for health workers.

The Baby Centre
This is extremely well written and full of information. It is the very best piece I found on the explanation of stillbirth and what it means for the parents. It was last reviewed in March 2015 and I felt confident reading it.

Tommy's fund research into stillbirth, premature birth and miscarriage as well as providing information for parents. The summaries of on-going research are well worth reading. Tommy's has set up the UK's first placenta clinic to focus on the placenta to improve monitoring of women whose pregnancies are affected by fetal growth restriction. There are many write-ups to read, which shows how much work is going on to reduce the stillbirth rate.

Miscarriage Association
There is a wealth of information including counselling services after loss. In particular there is another list of remembrance services and details of Baby Loss Awareness Week held in October every year.

Remember My Baby
Nicky Heppenstall explains more about this organisation in her article on page 7. The volunteers aim to promote baby remembrance photography across the UK.

Simpson's Memory Box Appeal is a Scottish charity and Its main aim is to provide memories for parents who have suffered baby loss, not only in Scotland but across the UK. It has lovely ideas including memory boxes and trees of tranquillity, as well as promoting family rooms in hospitals, providing gifts of cuddle cots, beds and cameras to labour wards and setting up support groups.

Count the Kicks
This is a charity that aims to help mums-to-be to understand their baby's movements. The resources are available to dads-to-be too. It has free leaflets, posters and antenatal note stickers.

Child Death Helpline
Bereaved parent volunteers, who are supported by a professional team, staff the helpline.

The Lily Mae Foundation
The Lily Mae Foundations works closely with Sands, mainly in the West Midlands area.


I could only do my search in English, so have not found the information for non-English speaking countries. If our overseas readers know of any other sites, please let us know.

The International Stillbirth Alliance
They have held conferences in 2013 and 2014 - the abstracts are available online and contain data on research results. Unfortunately, though, the newsletter is not kept up-to-date, the last one being October 2011.

Stillbirth in Ireland
Féileacáin Butterflies or Féileacáin are said to be the spirits of the departed who return to visit their favourite place and their loved ones to reassure them that they are alright. This is one of the sites I thought was most impressive, it's fairly new and is gentle but upbeat. There are some lovely ideas for remembering babies and the supporters of this charity are certainly providing a positive and thoughtful website and services.

Stillbirth in Australia and New Zealand

The Stillbirth Foundation
This is similar to Sands, including information about a potential mobile phone App called 'My Baby's Movements', similar to the Count the Kicks campaign in the UK. They also have information about research into 'maternal sleep health'.

Stillbirth in the USA

The Star Legacy Foundation
A very useful website, again similar to Sands, in particular there is an extensive list of worldwide published research updated to 2013 as of now. It also has a campaign on See Me, Feel Me - based on counting the kicks the baby makes. It highlights a list of potential considerations that may be linked with poor pregnancy outcomes. For example high and low blood pressure, snoring or having trouble breathing at night; along with potential changes in behaviour or practice such as sleeping on the left side which enhances blood flow to the baby and avoiding invasive vaginal examinations and membrane stripping which can increase the risk of infection. It also has a campaign called ASAP - Action for Stillbirth Awareness and Prevention.

This is a very comprehensive website and well worth reading. It includes a blog called Stillbirth Matters.

1st Breath
An organisation similar to Sands. It has an interesting App for women pregnant after previously experiencing a stillbirth (unfortunately named) SPROUT Pregnancy Essentials. It also promotes a device called Kick Trak which automates a kick chart - for more information on counting kicks see page 15).

AIMS will be keeping this information on the website, so if any reader would like to add to it, that would be most helpful and very welcome.

Latest Content


« »

Making Decisions

AIMS Journal, 2017, Vol 29 No 3 A huge welcome to readers old and new! The AIMS Journal, the backbone of our work for nearly 60 years, is now entirely available online, t…

Read more

Monitoring babies during labour: wh…

AIMS Journal, 2017, Vol 29 No 3 Jo Dagustun reports on the INFANT trial study day in October 2017 This national (central Birmingham based) free-to-attend study day on the…

Read more

What AIMS did for me: Ann Roberts

AIMS Journal, 2017, Vol 29 No 3 Ann Roberts shares her story of how AIMS helped her back in 1983 I first contacted AIMS 34 years ago (1983), when I was pregnant with my s…

Read more


« »

MBRRACE-UK ‘Saving Lives, Improving…

To register your interest please email or keep an eye on our website . Earlybird bookings will open…

Read more

Midwifery Today Conference “Birthin…

17–21 October 2018 Further Details

Read more


AIMS AGM 2018 All members welcome! Please email if you plan to attend to help us to judge numbers, or if you wish to send apologies 10 for 10.30 sta…

Read more

Latest Campaigns

« »

Dr. Ágnes Geréb, Hungarian Midwife…

Dr. Ágnes Geréb is a Hungarian obstetrician and midwife who has been under house arrest following her support for women outside of the obstetric system. March 2018: ENCA…

Read more

"Promoting professionalism, reformi…

AIMS submitted our response to this consultation on the 23 January 2018. A number of regulators, including the Care Quality Commission (CQC), the Professional Standards A…

Read more

The backlash against Normal Birth

Beverley Lawrence Beech At an AIMS AGM it is customary for the Chair to give an account of the activities of the Committee during the year. I am not going to do that this…

Read more