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By AIMS Campaign Team
AIMS is pleased to see that a programme of data surveillance have been put in place by researchers, as part of the UK Obstetric Surveillance System (UKOSS), to understand the effects of COVID-19 on pregnant women and their infants1.
UKOSS is perhaps one of the ‘crown jewels’ of the UK maternity system enabling research on rare conditions in pregnancy and childbirth across the whole of the UK, with excellent levels of reporting. UKOSS research is not just 'research for research's sake' - instead they focus on issues that are of concern for maternity care. As a joint initiative of the National Perinatal Epidemiology Unit (NPEU) at the University of Oxford and the Royal College of Obstetricians and Gynaecologists, they were able to launch this programme of surveillance very quickly and effectively.
We were very pleased to hear that we were not going to have to wait until the period of surveillance comes to an end (in March 2021) before the researchers shared their findings. Rather, the research team, led by the NPEU’s Professor Marian Knight, is keen to report emerging findings, to ensure that the data is used in a way which is likely to improve outcomes (for example, by driving changes in professional guidelines) as soon as possible.
To this end, the study team published their initial findings in the BMJ2 in May and offered three main conclusions:
The AIMS Campaign Steering group was particularly struck by one rapid response to the BMJ article. The response was written by Cassandra Yuill, a Medical Anthropologist who specialises in maternal health. She points out that, “the authors and the BMJ editors left out any reference to systematic racism and inequality in their discussion of infection disparities among minorities”. She states that the article suggests a “racialised view of biology that not only lacks a good evidence base but is also incredibly harmful”.
AIMS shares these concerns and hopes that they will be addressed when further data and analysis is published. We are expecting a further publication in September 2020.
1 COVID-19 in Pregnancy, NPEU - www.npeu.ox.ac.uk/ukoss/current-surveillance/covid-19-in-pregnancy
2 Characteristics and outcomes of pregnant women admitted to hospital with confirmed SARS-CoV-2 infection in UK: national population based cohort study - www.bmj.com/content/369/bmj.m2107
AIMS supports all maternity service users to navigate the system as it exists, and campaigns for a system which truly meets the needs of all. AIMS does not give medical advice, but instead we focus on helping women to find the information that they need to make informed decisions about what is right for them, and support them to have their decisions respected by their health care providers. The AIMS Helpline volunteers will be happy to provide further information and support. Please email email@example.com or ring 0300 365 0663.
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