The AIMS Guide to your Rights in Pregnancy and Birth

This page contains links and other additional support information to supplement the text of The AIMS Guide to Your Rights in Pregnancy and Birth. If you find any information on this page that is out of date please do let us know so that we can provide an update. Please email webmistress@aims.org.uk

How to use this page

If you have purchased a copy of The AIMS Guide to Your Rights in Pregnancy and Birth, you will see that instead of the references in the book, or links to further reading, being included in the text or at the back of the book there is a link to a web page - this one. This means that the book's references can be regularly checked and kept up to date, which is not possible when they are included in the printed text.

For each reference or link, check the page number in the book and then click on that number below. This will take you to the full reference, link or information referred to.

Page numbers

8, 9, 11, 15, 19, 20, 22, 23, 24, 27, 32, 35, 36, 38, 39, 42, 45, 46, 48, 49, 53, 54, 56, 58, 61, 62, 63, 69, 71, 72, 74, 75, 76, 77, 78, 79, 88, 90, 92, 97, 98, 99, 100, 101, 103, 106, 108, 110, 112, 113, 115, 116, 117, 118, 122, 126, 128, 129, 130, 131, 135, 136, 137, 140, 141, 142, 143, 144, 145, 146, 147, 151, 152, 153, 154, 155, 156, 157, 158

Page 1 - The NHS's web page on capacity: https://www.nhs.uk/conditions/consent-to-treatment/capacity/#:~:text=What%20is%20capacity%3F,a%20decision%20at%20that%20time.

More information on the law and capacity:

England and Wales: https://www.legislation.gov.uk/ukpga/2005/9/contents
Scotland: http://www.legislation.gov.uk/asp/2000/4/contents
Northern Ireland: https://www.health-ni.gov.uk/mca

Page 9 - Birthrights' Website: https://www.birthrights.org.uk/

Page 11 - AIMS' Birth information page on consent: https://www.aims.org.uk/journal/item/information-and-consent

Page 15 - Doula UK Website: https://doula.org.uk/

Page 19 - Charities which train Breastfeeding Counsellors: Association of Breastfeeding Mothers (https://abm.me.uk/) , La Leche League (https://www.laleche.org.uk/), Breastfeeding Network (https://www.breastfeedingnetwork.org.uk/) and NCT (https://www.nct.org.uk/)

Lactation Consultations Great Britain: https://lcgb.org/

Translators and interpretors, NHS guidance: https://www.england.nhs.uk/wp-content/uploads/2018/09/guidance-for-commissioners-interpreting-and-translation-services-in-primary-care.pdf

Page 20 - The AIMS Helpline can be reached by emailing helpline@aims.org.uk or calling +44 (0) 300 365 0663

Map of CCGs in England: http://geoportal.statistics.gov.uk/datasets/ccg-pct

Page 22 - Mat B1 form: https://www.gov.uk/government/publications/maternity-certificate-mat-b1-guidance-for-health-professionals/maternity-certificate-form-mat-b1-guidance-on-completion

Maternity pay in the UK: https://www.gov.uk/maternity-allowance

Page 23 - Discrimination during maternity leave: Maternity Action (https://maternityaction.org.uk/advice/discrimination-during-maternity-leave-and-on-return-to-work) and Citizens Advice Bureau (https://www.citizensadvice.org.uk/work/rights-at-work/parental-rights/maternity-pay-what-youre-entitled-to)

Entitlement to free NHS Maternity Care: Maternity Action (https://maternityaction.org.uk/charging-for-nhs-maternity-care/) and the NHS website (https://www.gov.uk/guidance/nhs-entitlements-migrant-health-guide)

Page 24 - The AIMS Birth Information Page, ‘Making Decisions about your Maternity Care’: https://www.aims.org.uk/information/item/making-decisions

Page 27 - MDU – Patients Recording Consultations: https://www.themdu.com/guidance-and-advice/journals/good-practice-june-2014/patients-recording-consultations

Page 32 - AIMS Birth Information Page ‘Making decisions about your care’ – https://www.aims.org.uk/information/item/making-decisions

Page 35 - AIMS Birth Information Page ‘Making decisions about your care’ – https://www.aims.org.uk/information/item/making-decisions

Page 36 - The NHS Constitution: https://www.gov.uk/government/publications/the-nhs-constitution-for-england/the-nhs-constitution-for-england

The NHS CQC Guidance on dignity and respect: https://www.cqc.org.uk/guidance-providers/regulations-enforcement/regulation-10-dignity-respect#legislation-links

Page 38 - The Family Rights Group Website: https://www.frg.org.uk/

Birthrights' Website: https://www.birthrights.org.uk/

Page 39 - The AIMS Guide to Resolution after Birth: https://www.aims.org.uk/shop/item/aims-guide-to-resolution-after-birth

The AIMS Helpline can be reached by emailing helpline@aims.org.uk or calling +44 (0) 300 365 0663

The AIMS Guide to Resolution after Birth: https://www.aims.org.uk/shop/item/aims-guide-to-resolution-after-birth

The Supreme Court ruling on the Montgomery V Lanarkshire case: https://www.supremecourt.uk/cases/docs/uksc-2013-0136-judgment.pdf

AIMS Journal article: https://www.aims.org.uk/journal/item/montgomery

Page 42 - AIMS' Book, "Gestational Diabetes": https://www.aims.org.uk/shop/item/gestational-diabetes

Page 45 - Consent and tea - a video: https://www.youtube.com/watch?v=pZwvrxVavnQ

Page 46 - AIMS Birth Information Page, 'Vaginal Examinations in Labour': https://www.aims.org.uk/information/item/vaginal-examinations-in-labour

AIMS Birth Information Page, 'Ways of Managing Your Labour: https://www.aims.org.uk/information/item/managing-labour

Page 48 - Nursing and Midwifery Council (NMC): https://www.nmc.org.uk/globalassets/sitedocuments/nmc-publications/nmc-code.pdf

General Medical Council (GMC): https://www.gmc-uk.org/-/media/documents/consent---english-0617_pdf-48903482.pdf?la=en&hash=C77983ADC0B63D655CC6BCFA89209B9C1A3D86A2 (5C)

Page 49 - Birthrights' Website: https://www.birthrights.org.uk/

The Family Rights Group Website: https://www.frg.org.uk/

Page 53 - AIMS Birth Information Page, 'Understanding quantitative research evidence’: https://www.aims.org.uk/information/item/quantitative-research

Page 54 - AIMS Birth Information Page, 'Making Decisions about Your maternity Care": https://www.aims.org.uk/information/item/making-decisions

Page 55 - Birthplace 2011: https://www.npeu.ox.ac.uk/birthplace/results

Page 56 - The AIMS Guide to Resolution after Birth: https://www.aims.org.uk/shop/item/aims-guide-to-resolution-after-birth

Page 58 - NHS' information page on pregnancy tests: https://www.nhs.uk/conditions/pregnancy-and-baby/pregnancy-test/

Page 61 - Better Births: https://www.england.nhs.uk/wp-content/uploads/2017/12/implementing-btter-births.pdf

Continuity of Carer in England: https://www.england.nhs.uk/wp-content/uploads/2017/12/implementing-better-births.pdf

Continuity of Carer in Scotland: www.gov.scot/publications/best-start-five-year-forward-plan-maternity-neonatal-care-scotland-9781786527646/

Continuity of Carer in Wales: gov.wales/sites/default/files/publications/2019-06/maternity-care-in-wales-a-five-year-vision-for-the-future-2019-2024.pdf

Continuity of Carer in Northern Ireland: https://www.health-ni.gov.uk/sites/default/files/publications/dhssps/maternitystrategy.pdf

Page 62 - The AIMS Helpline can be reached by emailing helpline@aims.org.uk or calling +44 (0) 300 365 0663

‘Midwifery 2020 – Delivering Expectations’: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/216029/dh_119470.pdf

Page 63 - IMUK Website - find a midwife: https://imuk.org.uk/families/find-a-midwife/

Page 69 - AIMS' Book, "Gestational Diabetes": https://www.aims.org.uk/shop/item/gestational-diabetes

AIMS' Book, "Group B Strep Explained": https://www.aims.org.uk/shop/item/group-b-strep-explained

AIMS Journal Article, 'High BMI waterbirth – time for trusts to take the plunge?' - https://www.aims.org.uk/journal/item/waterbirth-high-bmi

Page 71 - NHS' web page on CVS: https://www.nhs.uk/conditions/chorionic-villus-sampling-cvs/

NHS' web page on amniocentesis: https://www.nhs.uk/conditions/amniocentesis/

Page 72 - Information on the accuracy of the NIPT test: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4735304/#:~:text=Pooled%20sensitivity%20was%2099.3%25%20(95,%25)%20for%20all%20three%20trisomies

The NHS' web page on the NIPT Test: https://www.nhs.uk/conditions/pregnancy-and-baby/screening-tests-in-pregnancy/

Page 74 - AIMS Journal Vol 29 No 2, 'No tragedy to see here': https://www.aims.org.uk/journal/item/no-tragedy-to-see-here

Page 75 - Together for short lives: https://www.togetherforshortlives.org.uk/about-us/

Down’s Syndrome Organisation: https://www.downs-syndrome.org.uk/

Soft UK: https://www.soft.org.uk/

Positive about Down's Syndrome (PADS): https://positiveaboutdownsyndrome.co.uk/

PADS expectant parents’ page https://www.facebook.com/groups/415274562687672/?ref=share

PADS new parents’ page https://www.facebook.com/groups/2188980851370457/?ref=share

Antenatal Results and Choices: https://www.arc-uk.org/

Page 76 - NHS web site on the anomoly scan: https://www.nhs.uk/conditions/pregnancy-and-baby/20-week-scan/

Page 77 - The AIMS Guide to Induction of Labour: https://www.aims.org.uk/shop/item/aims-guide-to-induction-of-labour

AIMS Journal article, 'First do no harm': https://www.aims.org.uk/journal/item/induction-care-bundles

Page 78 - Ultrasound and left handedness: https://obgyn.onlinelibrary.wiley.com/doi/pdf/10.1046/j.1469-0705.2002.00659.x#:~:text=When%20ultrasound%20was%20offered%20more,handers%20among%20100%20male%20births

Concerns over ultrasound scan over-use: NHS and souvenir scans (https://www.nhs.uk/news/pregnancy-and-child/warning-over-souvenir-baby-scans/), RCOG and early scans (https://www.rcog.org.uk/en/guidelines-research-services/guidelines/sip49/)

Page 79 -

Dr Sarah Buckley's Ultrasound information: https://sarahbuckley.com/ultrasound-scans-in-pregnancy-your-questions-answered/

Yellow Card reporting scheme: https://yellowcard.mhra.gov.uk/

NHS page on the whooping cough vaccine: https://www.nhs.uk/conditions/pregnancy-and-baby/whooping-cough-vaccination-pregnant/

Page 88 - Birthplace Cohort Study 2011: https://www.npeu.ox.ac.uk/birthplace/results

Page 90 - The AIMS Helpline can be reached by emailing helpline@aims.org.uk or calling +44 (0) 300 365 0663

The NHS' guidance on different places of birth: https://www.nhs.uk/conditions/pregnancy-and-baby/where-can-i-give-birth/ and https://www.birthrights.org.uk/factsheets/choice-of-place-of-birth/

Ternovszky V Hungary: https://hudoc.echr.coe.int/eng#{%22dmdocnumber%22:[%22878621%22],%22itemid%22:[%22001-102254%22

Page 92 - The right to have a midwife attend a homebirth in England: https://www.gov.uk/government/publications/the-nhs-choice-framework/the-nhs-choice-framework-what-choices-are-available-to-me-in-the-nhs

The right to have a midwife attend a homebirth in Scotland: https://www.gov.scot/publications/best-start-five-year-forward-plan-maternity-neonatal-care-scotland/pages/8/

The right to have a midwife attend a homebirth in Wales: http://www.wales.nhs.uk/documents/A%20Strategic%20Vision%20for%20Maternity%20Services%20in%20Wales%20-%20September%202011.pdf

The right to have a midwife attend a homebirth in Northern Ireland: https://www.rqia.org.uk/RQIA/files/7c/7c7bf07d-dba9-4ab6-8213-8b13061a919a.pdf

NICE Guidelines on the right to have a midwife attend a homebirth in the UK: https://www.nice.org.uk/guidance/cg190/resources/intrapartum-care-for-healthy-women-and-babies-pdf-35109866447557 1.1.2

AIMS Birth Information Page, 'Booking a homebirth': https://www.aims.org.uk/information/item/booking-a-home-birth

Page 97 - The Royal College of Midwives (RCM)'s statement on freebirth, within the RCM Clinical Briefing Sheet: https://www.rcm.org.uk/media/3923/freebirth_draft_30-april-v2.pdfhttps://www.rcm.org.uk/media/3923/freebirth_draft_30-april-v2.pdf

The law on 'attending' a birth - The Nursing and Midwifery Order 2001: https://www.legislation.gov.uk/uksi/2002/253/article/45/made

AIMS Birth Information Page, 'Freebirth, Unassisted Childbirth and Unassisted PregnancyFreebirth, Unassisted Childbirth and Unassisted Pregnancy': https://www.aims.org.uk/information/item/freebirth

Birthrights' information page on freebirth: https://www.birthrights.org.uk/factsheets/unassisted-birth/

Page 98 - AIMS Journal article, 'Waterbirth and Induction of Labour': https://www.aims.org.uk/journal/item/waterbirth-induction

AIMS Journal article, 'High BMI waterbirth – time for trusts to take the plunge?': https://www.aims.org.uk/journal/item/waterbirth-high-bmi

The AIMS Helpline can be reached by emailing helpline@aims.org.uk or calling +44 (0) 300 365 0663

NICE Guidelines on Intrapartum Care of Healthy Women: https://www.nice.org.uk/guidance/cg190/chapter/recommendations (1.8.5)

Page 99 - HSE Manual handling guidance for midwives: https://www.hse.gov.uk/research/rrhtm/rr1132.htm

Page 100 - NICE Guidelines on caesarean section, Maternal request for CS: https://www.nice.org.uk/guidance/cg132/chapter/1-Guidance (1.2.9)

Page 101 - The AIMS Helpline can be reached by emailing helpline@aims.org.uk or calling +44 (0) 300 365 0663

Page 103 - NICE (https://www.nice.org.uk/), RCOG (https://www.rcog.org.uk/guidelines), RCM (htps://www.rcm.org.uk/), SIGN (https://www.sign.ac.uk/)

Page 106 - The AIMS Book, "Group B Strep Explained" by Sara Wickham is available in the AIMS store - https://www.aims.org.uk/shop/item/group-b-strep-explained

Page 108 - Naegele’s Rule: A reappraisal: https://obgyn.onlinelibrary.wiley.com/doi/full/10.1111/j.1471-0528.2000.tb11661.x

Page 110 - AIMS Birth information page 'Normal length of pregnancy': https://www.aims.org.uk/general/normal-length-of-pregnancy

Page 112 - The AIMS Guide to Induction of Labour: https://www.aims.org.uk/shop/item/aims-guide-to-induction-of-labour

AIMS Journal article, 'Labour Induction at Term – How great is the risk of refusing it?': https://www.aims.org.uk/journal/item/induction-at-term

Page 113 - NICE Guidelines – Inducing Labour: https://www.nice.org.uk/guidance/cg70/chapter/1-Guidance#information-and-decision-making (4.5)

Page 115 - The AIMS Guide to Induction of Labour: https://www.aims.org.uk/shop/item/aims-guide-to-induction-of-labour

Page 116 - Evidence Based Birth: The Evidence on Membrane Sweeping ( https://evidencebasedbirth.com/evidence-on-membrane-sweeping/), and Membrane Sweeping for Induction of Labour, Cochrane Review (https://www.cochrane.org/CD000451/PREG_membrane-sweeping-induction-labour)

Page 117 - The AIMS Helpline can be reached by emailing helpline@aims.org.uk or calling +44 (0) 300 365 0663

Page 118 - Caesarean Birth, Your Questions Asked: https://www.aims.org.uk/shop/item/caesarean-birth-your-questions-answered

Page 122 - AIMS birth information page, ‘Monitoring your baby’s heartbeat in labour’: https://www.aims.org.uk/information/item/monitoring-your-babys-heartbeat-in-labour

Page 126 - AIMS Birth Information Page, 'Ways of Managing Your Labour;: https://www.aims.org.uk/information/item/managing-labour

Page 128 - AIMS birth information page, 'Vaginal examinations in labour': https://www.aims.org.uk/information/item/vaginal-examinations-in-labour

Page 129 - The Miles Circuit: http://www.milescircuit.com/ and Spinning Babies: https://spinningbabies.com

Page 130 - Caesarean Birth, Your Questions Asked: https://www.aims.org.uk/shop/item/caesarean-birth-your-questions-answered

Page 131 - Cochrane review on cord clamping: https://www.cochrane.org/CD004074/PREG_effect-timing-umbilical-cord-clamping-term-infants-mother-and-baby-outcomes

Page 133 - Cochrane review on delayed cord clamping: https://www.cochranelibrary.com/central/doi/10.1002/central/CN-01410407/full

Blood to baby campaign: https://www.bloodtobaby.com/

Wait for white: https://waitforwhite.com/

Page 135 - Active management of the third stage of labor may reduce breastfeeding duration due to pain and physical complications: https://pubmed.ncbi.nlm.nih.gov/25347567/

The AIMS Book - Birthing Your Placenta: https://www.aims.org.uk/shop/item/birthing-your-placenta-the-third-stage

Page 136 - AIMS Birth Information Page, 'Post Partum Haemorrhage;: https://www.aims.org.uk/information/item/pph

Page 137 - The AIMS Book - Birthing Your Placenta: https://www.aims.org.uk/shop/item/birthing-your-placenta-the-third-stage

Page 140 - AIMS Birth Information Page, 'Vitamin K and your Newborn Baby': https://www.aims.org.uk/information/item/vitamin-k

Page 141 - The NHS' web page on the NIPE test: https://www.gov.uk/government/publications/newborn-and-infant-physical-examination-programme-handbook/newborn-and-infant-physical-examination-screening-programme-handbook

Page 142 - The Family Rights Group Website: https://www.frg.org.uk/

The AIMS Helpline can be reached by emailing helpline@aims.org.uk or calling +44 (0) 300 365 0663

Page 143 - The Breastfeeding Network Drugs in Breastmilk information pages: https://www.breastfeedingnetwork.org.uk/drugs-factsheets/

Page 144 - Kangaroo care: https://midwiferytoday.com/mt-articles/kangaroo-care-work/

Bliss' Website: https://www.bliss.org.uk/

Page 145 - UNICEF and NEC: https://www.unicef.org.uk/babyfriendly/news-and-research/baby-friendly-research/infant-health-research/infant-health-research-necrotising-enterocolitis/

Page 146 - Cochrane and NEC: https://www.cochrane.org/CD002971/NEONATAL_formula-versus-donor-breast-milk-feeding-preterm-or-low-birth-weight-infants

Association of Breastfeeding Mothers (https://abm.me.uk/) , La Leche League (https://www.laleche.org.uk/), Breastfeeding Network (https://www.breastfeedingnetwork.org.uk/) and NCT (https://www.nct.org.uk/)

UK Association of Milk Banks: http://www.ukamb.org/

Human Milk Foundation: https://humanmilkfoundation.org/

Kellymom (board certified lactation consultant) web page on breastfeeding and pain reduction: https://kellymom.com/bf/can-i-breastfeed/illness-surgery/bf-analgesia/?fbclid=IwAR16BPjr88O6hk5BbUkDwXZbDSbks9-9IPRpvpOI4UeuGx5Vl11bHW4dy0I

Page 147 - AIMS Birth Information Page, “Freebirth, Unassisted Childbirth and Unassisted Pregnancy” https://www.aims.org.uk/information/item/freebirth

Page 151 - Miscarriage Association and early ultrasound scans: https://www.miscarriageassociation.org.uk/information/worried-about-pregnancy-loss/ultrasound-scans/

Miscarriage Association Website: https://www.miscarriageassociation.org.uk

Tommy's website: https://www.tommys.org

Miscarriage Association's booklet on the options for managing a miscarriage: https://www.miscarriageassociation.org.uk/wp-content/uploads/2016/10/Management-of-Miscarriage-April-2019.pdf

Page 152 - The Miscarriage Association and Tommy’s have an information sheet on tests after miscarriage: http://www.miscarriageassociation.org.uk/information/miscarriage/tests-treatments/

https://www.miscarriageassociation.org.uk/information/miscarriage/recurrent-miscarriage/

https://www.tommys.org/pregnancy-information/pregnancy-complications/baby-loss/miscarriage/recurrent-miscarriage

Miscarriage Association's leaflet on signs of a miscarriage and ectopic pregnancy: https://www.miscarriageassociation.org.uk/information/worried-about-pregnancy-loss/signs-symptoms/

Information from the NHS and the Miscarriage Association on how an ectopic pregnancy may feel:

https://www.nhs.uk/conditions/ectopic-pregnancy

https://www.miscarriageassociation.org.uk/information/ectopic-pregnancy/symptoms-diagnosis/

https://www.miscarriageassociation.org.uk/information/ectopic-pregnancy/]

Page 153 - NICE guidelines - Ectopic pregnancy and miscarriage: diagnosis and initial management': https://www.nice.org.uk/guidance/ng126

Tommy's web page - 'Planning a funeral for your stillborn baby': https://www.tommys.org/pregnancy-information/pregnancy-complications/baby-loss/stillbirth/planning-funeral-your-stillborn-baby

Page 154 - National Bereavement Care Pathway (NBCP) Standards: https://nbcpathway.org.uk/nbcp-standards

Page 155 - Sands Position Statement, 'Taking the baby home': https://www.sands.org.uk/sites/default/files/Position%20statement%20Taking%20the%20baby%20home_2.pdf

Page 156 - Miscarriage Association Web Page, 'Guidance for miscarriages that occur at home': https://www.miscarriageassociation.org.uk/information/for-health-professionals/guidance-miscarriages-occur-home/

Page 157 - National Bereavement Care Pathway (NBCP) Standards: https://nbcpathway.org.uk/nbcp-standards

Page 158 - Sands Web Page, ' Forms and certificates': https://www.sands.org.uk/forms-and-certificates

Miscarriage Association Web Page, 'Certification': https://www.miscarriageassociation.org.uk/information/for-health-professionals/certification/

Miscarriage Association Web Page, 'A pregnancy loss certificate': https://www.miscarriageassociation.org.uk/2017/01/pregnancy-loss-certificate/

Links to organisations who support parents after miscarriage, stillbirth or neonatal death:

Miscarriage Association: https://www.miscarriageassociation.org.uk/

Sands: https://sands.org.uk/

Bliss: https://www.bliss.org.uk/

Baby Loss Awareness: https://babyloss-awareness.org/

Tommy’s: https://www.tommys.org/

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