Heart health in pregnancy study needs your help!

ISSN 2516-5852 (Online)

AIMS Journal, 2026, Vol 38, No 1

Rebecca Jarman wrote for the AIMS journal in 2024 about Peripartum Cardiomyopathy (PPCM), a rare but potentially life-threatening disease of the heart muscle presenting uniquely during the last few weeks of pregnancy or the months following birth. Rebecca is a member of the NIHR-BHF Cardiovascular Partnership Maternal Cardiovascular Health theme working group and part of a research team being led by Dr Paz Tayal and Dr Antonio de Marvao who have developed PREG-HEART. The research team is looking for participants for their study.

A request from Rebecca Jarman

PREG-HEART is the first UK-wide, direct-to-patient, online research study dedicated to heart health in pregnancy.

Here's a bit of info about PREG-HEART:

The number of pregnant women with heart disease is rising, but there are very few research studies looking specifically at maternal heart health.

We want to understand how heart health affects women during and after pregnancy, to improve care and health outcomes for many women in the future, and we need your help!

We are looking for women living in the UK who are:

  • Currently pregnant or have been pregnant in the past, and were diagnosed with heart disease before, during, or up to 6 months post-pregnancy;

  • Currently pregnant and do not have heart disease.

What will participants need to do?

  1. Register on the website PREG-HEART | HeartHive

  2. Sign an online consent form

  3. Fill in a short health survey each year, for as long as they wish to take part

The PREG-HEART study launched officially on 10th February 2026 for a 6 month pilot phase. If this proves successful the plan is to secure further funding to continue the study long term. This is a direct-to-patient study and Rebecca needs to ensure that the target population (those who are currently pregnant or who have previously been pregnant and experienced heart disease) are aware of it and have the opportunity to sign up. Please spread the word.

If you think you may be interested in taking part, please register your interest here: PREG-HEART | HeartHive


The AIMS Journal spearheads discussions about change and development in the maternity services.

AIMS Journal articles on the website go back to 1960, offering an important historical record of maternity issues over the past 60 years. Please check the date of the article because the situation that it discusses may have changed since it was published. We are also very aware that the language used in many articles may not be the language that AIMS would use today.

To contact the editors, please email: journal@aims.org.uk

We make the AIMS Journal freely available so that as many people as possible can benefit from the articles. If you found this article interesting please consider supporting us by becoming an AIMS member or making a donation. We are a small charity that accepts no commercial sponsorship, in order to preserve our reputation for providing impartial, evidence-based information.

JOIN AIMS

MAKE A DONATION

Buy AIMS a Coffee with Ko-Fi

AIMS supports all maternity service users to navigate the system as it exists, and campaigns for a system which truly meets the needs of all.

Latest Content

Journal

« »

Sovereignty of the Body: Birth, Int…

AIMS Journal, 2026, Vol 38, No 2 By Tamara Blakemore The First Breath I’m a birth artist, and apparently I’m here to talk about the sovereignty of the body, which feels s…

Read more

Scottish Maternity Update: Review o…

AIMS Journal, 2026, Vol 38, No 2 By Camille Del Pozo and Anne Glover on behalf of the AIMS Campaigns Team Background AIMS wrote to Neil Gray, the Cabinet Secretary for He…

Read more

The sovereignty of the body in preg…

AIMS Journal, 2026, Vol 38, No 2 By Alex Smith Welcome to the June 2026 edition of the AIMS journal. This issue is about the sovereignty of the body in pregnancy and chil…

Read more

Events

« »

AIMS Workshop: Wellbeing

AIMS is delighted to be hosting a Wellbeing workshop delivered by Ruth Weston , veteran birth activist, AIMS volunteer and author of 'Born Stroppy Make Change Happen'. Th…

Read more

Threads of Protest

Join us for the launch of Threads of Protest A new exhibition at Science Gallery London exploring inequality in maternity care through creative practice, lived experience…

Read more

AIMS Workshop: Focusing on Rights i…

Join us for one of our series of interactive online AIMS workshops, " Focusing on Rights in Pregnancy and Birth ". Emma Ashworth (principal author of "The AIMS Guide to Y…

Read more

Latest Campaigns

« »

Making sense of maternity service r…

By Jo Dagustun, Senior Campaigns Volunteer As readers grapple with the latest set of national recommendations and actions from Donna Ockenden's Nottingham report , Valeri…

Read more

AIMS comments on the 10 Point Plan…

In the light of two recently-published hefty reports on the past and present functionality of the maternity and neonatal services, first in Nottingham and then across Eng…

Read more

Open letter to Michelle Welsh MP, N…

17th June 2026 Dear Michelle The AIMS Campaigns Team, and AIMS more broadly, would like to warmly welcome you to your new role as National Maternity Advisor. We look forw…

Read more